Livewire Siblings Launched

Livewire Launches Siblings Community To Support Brothers & Sisters Of Young People Living With a Serious Illness, Chronic Health Condition or Disability

Livewire, a wholly owned subsidiary of the Starlight Children’s Foundation, today launched Livewire Siblings, a new online community, where young people aged over 10 and under 21, who have a brother or sister living with a serious illness, chronic health condition or disability can support and connect with one another.

Livewire Siblings siblings.livewire.org.au is a free, safe and supportive community where young people can meet and chat online with other siblings who understand what they are going through. The site allows them to share experiences as well as gain skills and knowledge to help them feel more in control of their situation.

Currently, there are approximately 585,000¹ siblings, aged over 10 and under 21, of people living with a serious illness, chronic health condition or disability in Australia. These young people often face unique teenage challenges, and suffer a heavy emotional burden – experiencing feelings of isolation from the rest of their family and their peers; as well as guilt, confusion, anger, jealousy.

Prominent child and adolescent psychologist, Dr Michael Carr-Gregg, says “The sibling relationship is the single most important relationship that a chronically ill young person will have – in terms of its duration and intensity – and the psychological impact on the sibling can be as significant, if not more, than the psychological impact on the patient.

“Up until very recently, siblings needs have been overlooked and ignored, and I commend Livewire for recognising the importance of this formerly invisible group,” he concluded.

As part of Livewire Siblings, young people can chat online with other siblings, create blogs, read content and information created just for them, check out the latest music and games, post in forums and have their say!

“The launch of Livewire Siblings, signifies the next exciting step in Livewire’s goal to connect and support young Australians, aged over 10 and under 21, living with a serious illness, chronic health condition, and their families. Too often, the needs of siblings are forgotten in the wake of their brother or sister’s illness, yet there is an overwhelming need to connect and befriend others with similar experiences who understand their situation and can empathise,” says Omar Khalifa, Managing Director, Livewire.

“Livewire aims to fulfill their need to connect with others, providing a forum for self expression, and enabling them to work through the healing process by discussing issues, concerns, troubles and experiences,” he added.

Unlike other social networks, Livewire Siblings is a secure, moderated community tailored to the needs of its members. Livewire Siblings chat hosts and moderators are trained in adolescent health, and are online seven days a week to ensure that Livewire remains a supportive and fun place to be. Livewire works closely with the Australian Federal Police to help ensure all members of Livewire remain safe while engaging with the community.

This project is supported by funding from the Australian Government under the Clever Networks program, Starlight and major partners. This funding has enabled Livewire to develop a long lasting, sustainable program that will connect, support and empower its members.

Any young Australian aged over 10 and under 21, who has a sibling currently living with a serious illness, chronic health condition or disability who wishes to join Livewire Siblings, or find out more information should visit www.livewire.org.au or contact member.services@livewire.org.au.

NOTES:
1 ABS, “Australian Social Trends, 2008” – Families with a young child with a disability – average family size of children with a disability is 2.3 children compared to 1.8 children in couple families without a child with a disability.

 

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Trick or treat? (PAKA)

Dress up for Halloween and have fun at the Parents Assisting Kids with Autism (PAKA) Halloween Party for
kids with autism and Asperger Syndrome, and their families.

Trick or treat your way around the hall with activities for the kids,
sausage sizzle and fun for the whole family.

$15 entry for kids, includes trick or treat

Adults free with accompanying child

All children must be accompanied by an adult

Where: 2B Chief St Hindmarsh

Saturday October 31st 1:30 – 4:00 pm

For more details contact Nadia on 0400 703 099 or email
paka1@iprimus.com.au

 

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Siblings Project Free Workshops

Do you have a brother or sister with a disability?
Are you aged between 15 – 27 and have an interest in the performing arts?
Want to get involved in a creative project?

The Siblings Project is an opportunity to use dance, theatre, music, photography or film to engage with Australia’s leading youth dance company that works with disabled and non-disabled people to create unexpectedly real dance theatre.

When: Wednesday evenings from 6.00 – 8 pm
29th July – September 23rd
Where: Restless Studio, 234a Sturt St Adelaide SA 5000 (entrance off Arthur St).
Cost Free.

For bookings and more information:
Telephone: (08) 8212 8495
Email: info@restlessdance.org

 

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National Conference on Sibling Issues

Siblings Australia will host the conference at Adelaide University on 18-20  November 2009.

The focus of the conference will be on creating connections to ensure quality sibling support now and into the future, and is for anyone interested in families of children / adults with special needs – providers, researchers, policy makers and families themselves.

For submission details for presentations and to register your interest in attending go to www.sapmea.asn.au/siblings09

 

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Update on Siblings Australia Adult Sibling Project

This document provides an update on the Siblings Australia Adult Sibling Project (funded through a grant from the Julia Farr MS McLeod Benevolent Fund). It was prepared by Kate Strohm.

Why is this Project important?

The Project is aiming to develop strategies and resources which will support adult siblings, both in relation to any of their own emotional issues and also in their role as a support person to a brother or sister living with disability. It is hoped the project can contribute to helping to maintain and / or strengthen relationships between adult siblings and their brother or sister living with disability.

In the current ageing population it is likely to be the siblings who will have the longest relationship. Having a positive, strong relationship with a sibling may add to the quality of life of the person living with disability.

You can check the Siblings Australia web site for more information about the Project at www.siblingsaustralia.org.au/ps_cprojects.asp.

Recent Adult sibling project activities

Our previous email update talked about the Focus Groups which were run for Adult Siblings to let us know their needs now and into the future. As highlighted in those sessions, adult siblings would like information about a number of issues related to future planning, including legal and financial issues, models of funding & accommodation options etc.

Information Session

Based on feedback from Adult Siblings at the Focus groups we planned an Information Session focusing on “Legal Issues for Adult Siblings” of people living with disability. The session was held on 26 March 2009 at 7pm at DIRC and presented by Ian Bidmeade, AM. Ian is a legal consultant with a particular interest in the areas of health and disability. The session was attended by 20 people. Ian presented information about the Guardianship Board, the Office of the Public Advocate, Wills and Financial Trusts. Ian’s presentation concentrated on these issues from the perspective of Adult Siblings and the roles they might play in the lives of their brother or sister living with disability.

Those who attended the session gave positive feedback about the relevance and quality of the session. Some comments about what was useful in the session included;

“Exposure to legal terms and overview of [Guardianship] boards and roles in the law”,

“Defining roles of siblings – legal and chosen”

“Clarification of need for will and provisions to include in will”.

Participants expressed an interest in knowing more about Future Planning for their brother or sister living with disability, legal issues and Advocacy.

Where to from here?

Consulting people living with disability

We plan to talk to people living with disability about their relationship with their sibling(s). We hope to find out which factors contribute to maintaining strong relationships between people living with disability and their siblings and which factors contribute to a negative experience of the sibling relationship.

We have developed an Information Sheet for parents/carers/guardians of people living with disability, an Easy English Information Sheet for people with an intellectual disability / cognitive impairment and an Information Sheet for people living with disability.

We are looking to interview or survey people living with disability either in small groups or individually about their perceptions of their relationship with their siblings.

Further Information Sessions

We are having discussions about future information sessions to be held for adult siblings based on the feedback from participants at the Information Session held in March. Please contact us if you are interested in attending Information Sessions or you have ideas on topics that need to be addressed.

Written resources

We are developing brochures for adult siblings on a number of topics. If you would like to review these and provide feedback please let us know and we will send you a copy.

Siblings Australia ‘Creating Connections’ National Conference November 09

In late 2004 Siblings Australia hosted the first national conference on sibling issues and attracted 140 delegates, including 10 from overseas. We are repeating this conference in November this year in Adelaide and we are planning on including a full adult sibling stream, covering many topics of relevance to adult siblings. You can register your interest at http://sapmea.asn.au/siblings09/

Sibchat

If you would like to make contact with other adult siblings please consider joining Sibchat, our online forum for adult siblings. We have members from around Australia but also from the UK, Sweden and the Czech Republic!! Visit http://www.siblingsaustralia.org.au/forum/register.asp and register

How can you help?

There are a number of ways in which you might help.

Consulting People Living with Disability

If you are a person living with disability please make contact and we will send you the information sheets so that you can decide whether to participate in our consultations.

If you have a family member living with disability who might be interested in taking part in the project make contact and we will send you information sheets about the project so that your family member can decide whether to participate in the project.

If you are a service provider, you could identify people living with disability in your service who might be interested in taking part in either a group or individual discussion about their relationship with their brother or sister. Make contact with us and we will send you information sheets about the project so that individuals (and/or their parents/guardians) can decide whether to participate in the project.

Parents & Friends Groups

We are keen to present information about the project to, and gain feedback from, “Parent & Friends” or similar groups.

Consumer Groups

We are keen to present information and gain feedback from “Consumer Groups” for people living with disability.

If you are interested in being involved in the project in any way please contact;

Kate Strohm (Director, Siblings Australia) 0408 720 558 or email kate@siblingsaustralia.org.au,
Vicky Waldren (Project Officer) on 0418811238 or email vickyw@internode.on.net.

Thank you in advance for your support

Kate & Vicky

Kate Strohm

Executive Director

siblings: acknowledged, connected, resilient.

ph: 08 83571214

mob: 0408 720 558

23a King William Road, Unley, SA 5061
kate@siblingsaustralia.org.au
www.siblingsaustralia.org.au

 

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Are You A Sibling of a Person With a Disability?

The Siblings Australia web-site has forums for siblings of different ages and is currently looking for a young adult sibling who could be involved in managing in a voluntary capacity the two forums for younger siblings – sibchat4kids and teensibchat.

It isn’t a huge task, but requires someone with an outgoing personality and, ideally, some internet/forum skills. If two people would like to share the role, that would be OK.

Although the position would start out as voluntary, there is the possibility of this changing if Siblings Australia’s financial position changes.

Contact Kate Strohm at:

Mobile: 0408 720 558

Email: kate@siblingsaustralia.org.au

 

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